The Australian Childhood Vision Impairment Register (ACVIR)

The Australian Childhood Vision Impairment Register (AVCIR) is sponsored by the Royal Institute for Deaf and Blind Children (RIDBC). The Register has ethics approval from the Hunter New England Human Research Ethics Committee.

Why was the Register started?

The Register was started due to the lack of Australian data on children with vision impairment. Without this information it is difficult to plan and advocate for children’s needs in all areas including education, social and medical needs.

How is data on the Register gathered, stored and used?

Data is gathered from the child’s family or guardian, and their eye specialist, by completion of a data form. All data is stored securely and when released, the data is in a format that children and families can’t be identified. Data is made available to approved service providers and researchers working in the area of eye and vision disorders.

What data is collected?

From families: their child’s name, address & ethnicity; their child’s eye condition, history of previous and current medical care & and health status, low vision support the child receives From the child’s eye health professional: the primary eye diagnosis and any other eye or health conditions; the child’s visual acuity, visual fields and general visual status.

How do families register?

Registration is free.

What is the benefit of registration?

Once registered families are offered access to a website called the VI Family Network which provides low vision resources from a number of service providers and an online parent forum where parents can meet, chat, support one another and exchange ideas. Families are also notified regarding upcoming events.

 


Last updated: October 2, 2013 at 19:06 pm